Tuesday, February 3, 2015

Kylie's Kolors

I had something else typed up and ready to post. It was another one of my this-is-a-crazy-busy-mom-life type of post. I was feeling sorry for myself the other day about having to rush off to work every morning and leave my two littles. I was complaining about the stresses of being a working mom and having to balance my full-time job along with momma, maid, chef, accountant and everything else.... I was about to post that.

When everything is going smoothly in life, we pray less. We pray SO MUCH less. And then we find little, trivial, meaningless things to pick at and whine about. I try my very best to keep my life and all of its blessings straight out in front of me.... but I still find myself counting the days until Friday; wishing for the next holiday break. Like I'm so miserable.

I also try my best to never ever forget the emotional roller coaster that Daddo and I endured when we found out our fourth child, not yet born, had a very rare disease and would need a lot of care once here. And those 'unbearable' five days in the ICU and Children's Hospital.... those are my perspective. And I still forget. I still nag about laundry, dust and a jam-packed activity schedule. I pray a little and not enough.
I understand that only our God has control and has a plan for our lives. I know it can all be taken from us at any moment. And I still become complacent and whiney.

Not long ago I ran across this precious, precious mom and her adorable little girl on instagram. This amazing woman is enduring the most agonizing pain any parent can feel. Her daughter was born a couple of weeks before our daughter in May 2012. She was healthy and beautiful. At 19 months old she was diagnosed with Stage 4 Neuroblastoma. The two have not slept in their own beds since the diagnosis just over a year ago. A year. We read about strong people in the news every day. Athletes, celebrities, powerful politicians.  This is the real definition of strong.
There is no cure. Her second year of life has been spent inside a hospital or outpatient facility. No holidays, vacations or even a trip to daycare. The central part of her tumors is in her adrenal gland and liver. You hate to ask why but you do. I wonder why Cora's cysts in her liver were the type to never return.... and why this little girl's weren't. I wonder why bad things happen to some kids. I worry every day that the bad thing will attack my home. But we keep going through our routine of life, pushing our blessings to the side, forgetting everything that we should be thankful for and the same things we should pray for.
Please go to this website kylieskolors.com and learn more about this beautiful little girl, her momma and daddy, and their courageous journey. Read about the debilitating effects of this childhood cancer, and the staggering statistics. The nail polish is one of the ways this family is receiving financial aid. Each color has a meaningful name.
This just breaks my heart and builds it up at the same time. It's my reminder. Pray, pray, pray and be thankful.
I'm human. I'm still going to be anxious, worried, stressed and overwhelmed with the small things, and I'll still share it on here for all the equally scatterbrained moms to read. It helps us all feel a little less crazy and better parents (at least it does me) to hear about others making the same mistakes decisions. But I needed to stop and share this with everyone as it's been on my heart for awhile. If you can, purchase some of these pretty nail polish colors for a special little girl in your life.

After all, little girls should be painting their nails, rather than fighting cancer.






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